I am currently have found life very frustrating lately. It’s hard to describe.
I’m so ready to be done with chemo and being sick. Even though most days I don’t act sick. I pretend and try very hard to be well. I don’t think people understand how hard it is to be like this. Ok maybe one person I can think of knows. She’s got her own fight on her hands and has been fighting far longer than me. It’s part of the reason I do what I do. She’s a fighter and so am I. I think it runs in the girls in my family.
Describe chemo. I hate it. I hate sitting there for 8 hours. I hate being nauseous the whole day. I hate losing my sense of taste. I hate being exhausted just from driving for 10 minutes. Words get lost in my head. I’ll forget what I’m saying as il saying it. I have to write everything down. It’s why I like texting more than talking on the phone. I can remember the conversation.
I’m tired of being sad. Most days I’m pretty good at pretending I’m ok. But on some moments it’s hard. Like when the music goes off in the haopital(every time a baby is born it goes off). All I can think of is how I’ll never get that moment and how’s it been robbed from me. It makes me angry.
I’ve given up on wanting a baby. I’m going to adopt a child. Looking at Poland currently. Why not American? Mostly because a birth mom could fight to get them back. Sounds selfish but I’ve gone through enough heart ache. I need to know it’ll be permanent and no one can take them back. Poland does sibling groups, so I’ll get two at once. I want them both under 5 if possible. It’s what keeps me going. Keeps me fighting and keeps me happy. Someday I’ll get to go to Poland and being back my kids. Mine.
I’m pretty good at staying positive. I keep busy. I work. My wedding has been helping though most of everything is done now, minus paying for it. Jeff has been amazing. I’d be lost without him honestly.
Been watching a lot of hockey lately. It’s been awesome. I love it. The speed the anticipation, and amazingness. Love it. Helps me focus on something other than how gross I feel.
Got a new camera and I’ve been playing with that. I miss taking photos of moments. I’m hoping it’ll help me focus on the psi tibe as well. I love sunrises and sunsets. I love the night sky and the moon. I’m hoping to go up north and see the northern lights. That would be amazing.
So not much of animate but it’s me and what I’ve been thinking/doing. Chemo Tuesday. Second to last one. I cannot wait to be done. I want my life back.
It’s been a long time since I’ve written. Part of it was I haven’t felt the need to write. Usually I do. I have to type it out and get it out. Lately I just haven’t.
I’m on round three of chemo. I had a CT and of my three spots one is gone, the other two are responding to treatment. I feel so much better knowing it’s working. These last few months have been long and hard. I keep a good face though. I have to. I’ll go crazy if I don’t.
I’m constantly amazed by the kindness of others. My old floor where I used to work, made shirts for me and raised some money for a gift card. It was amazing. People tell me I’m brave and an inspiration. It’s strange to me. I don’t feel those things. I just try and keep my sanity one day at a time. And it’s really hard.
It’s hard to see commercials with babies. Or see new moms or pregnant people. It just makes me feel lonely. I was a very happy person a year ago. I was so excited for my future. Then I lost almost everything. I had to make the hardest choice of my life. Everyday I have to live with that. It slowly gets easier some days. Others it’s harder. Mother’s Day is coming up. That will be hard. I know I won’t get a happy Mother’s Day anything. So that sucks. It shouldn’t but it does.
I’ve been looking into adopting. I won’t be able to carry my own ans honestly I don’t want to anyone else to carry them. I can’t handle anymore loss. I need something guaranteed which is why I’m looking at Polish adoption. I want siblings, a boy and girl, and under the age of 4. Instant family for all I’ve missed. I won’t get a baby. Usually it’s toddlers about 14 months and older. But I’m ok with that. Nothing will replace what I’ve lost, but I just have to be a mom. One way or another I will be.
After my next three rounds of chemo, if I still have spots on my lungs I get to have surgery. I still have a high chance of cancer coming back. My oncologist says we don’t beat this type of cancer, we just try to push it into remission. I hope I can achieve that. I want nothing more than my boring life back.
So a little update from me. I’ll try and post more often, but like I said in the beginning, I just haven’t felt the urge to write like I did. Have a good one!
YouTube video for those interested. It’s 10 minutes of me rambling. Enjoy! Lol
The biopsy is back and it is as we suspected. Cancer. It’s not good. I won’t sugar coat it. I meet with my oncologist to discuss what is next either Monday or Tuesday. I ala start my new job Monday. It’s going to be a busy week.
I will be having surgery to get my port as soon as possible then start chemo in two weeks. This will be different. I will have chemo every three weeks instead of once a week this time. Also getting three types of chemo instead of one. Oh the joys.
Been making a bucket list. I’m sure to some people that sounds morbid but I’ve never been one to run away from the truth.
I think the videos are going well. I feel like I can say more in them than I can type sometimes.
So that’s what is going on. Good times.
Today was lung biopsy day. Oh joy. Once again I made a short video. Any questions feel free to ask. Will get results in 3-4 days.
Going to try YouTube updates. Let me know if the links don’t work!
It is set up that you can only get to the video through the link. You cannot find it by just searching my channel. So please be sure to click the link.
Trying to stay happy as this year starts. I did a little packing and I get to spend 4 days with Jeff. That is awesome.
We went to the Red Wings game last night. They lost 5-2 to the Penguins but it was still fun. I was in the Legends Club and got all the food I could eat! So basically heaven for me! I’ve been to 3 games this year alone. That is crazy. Also went to a Tigers and Lions game. I am one lucky Detroit fan! After the game we came home to watch Michigan State. Was sad they lost, but I did keep myself awake for the ball drop. Then about five minutes after was asleep lol
I was ready for this year to be over in July. True statement. Now it’s over and I am in 2016. Crazy. I really hope it goes well. I can’t let myself get too happy until I know my test results. Once I know how my cancer is I can breathe. Until then it’s a giant waiting game for me. A horrible horrible waiting game.
50 days until my cruise! I even packed a little and did some laundry. Packed a few dresses for our dinners. I’m going to dress up, eat as much as possible, and relax for the first time I over 7 months. The thought of sun and sand is so intoxicating right now. I can’t wait for the sound of the sea and sun on my face.
I hope everyone has a happy new year too!
So I survived Christmas. I didn’t cry and I was proud of myself. It was still hard though. I received plenty of love. Also got money for my cruise and I am very grateful! I can’t wait to post pictures of my cruise!
Now on to New Years. We are going to a Red Wing game again. Finally this disaster of a year will be over. As much as I want 2016 to be amazing, and parts of it will be, it will still be semi-bitter sweet. It should have been the year my life changed and I brought my baby into this world. So it’s hard to think that 2016 will be great. It will be nice, but I will always have a hole in my heart.
So enough depressing stuff
52 days until my cruise. I have a packing list and my E-Docs have been sent to my email! I am almost ready! Just have to do laundry and pack everything in my suitcase. I am ready to pack and get ready for a week of fun and not thinking. new places, new memories, and new adventures!
I don’t know why I get so excited about packing. It really doesn’t make much sense. I guess it’s just a response and I know something positive is coming next. Plus that and I love new places. Even if it is just down the street, it is new and fun. I also love plane rides! I love being above the clouds! So much fun.
Plus I’ll be honest I do enjoy not being connected to the internet and the world. I get to cruise and be with that person. No distractions, no phone, no work. It is wonderful and you really get to know someone. I really enjoyed the cruise with my mom, and I love going with Jeff. Next to the food it may be my favorite part of cruising!
One of my favorite gifts this year was from my dad. It is a squished penny folder. I love collecting those silly things! I was pumped to put all my pennies in there. I have a lot but in the folder it doesn’t look like many! So I guess I will have to collect more! Oh, and they have the on the boat!
Depression. Along with my anxiety have been my two companions my entire life. Sometimes, like this year, they can be overwhelmingly heavy to carry. Some years I barely notice them.
People get his misconception that you can just make yourself happy if you try hard enough. I strongly dislike people who think that way. I won’t say hate, because I don’t hate people. They believe it’s made up. A way to get attention. In some ways we want attention. Attention to what we feel. Sadness, emptiness, and the loss of interest in anything. I can no more make myself happy, than I can cure cancer. It just doesn’t work that way. No matter how hard I try or people motivate me to try. I am what I am. I feel what I feel. Nothing really can help me buy time.
Some people lay in bed for days. The thought of getting up and dealing with people and life so terrifying it makes us get sick. We are so worried that people will notice how insecure we are. That we will not live up to expectation. That we are not good enough to be around.
For me the loss I’ve had this year along with the unknown of what is next puts me in a very bad place. Thank goodness for FMLA or else I’d probably lose my job. The job I do contributes to my depression as well. It’s awful and sending me down an horrible spiral of emptiness. My job is thankless and makes me feel worthless.
With people I feel pretty ok. Not amazing but good. They distract me from my life problems for a while. Then when I’m alone my brain sneaks up and begins to fill me with doubt and worthlessness. Deep down I know I’m not big I’ll think it anyways. It’s like slowly sinking in the ocean and watching people on the shore watch and ignore you.
I’m trying to get better. For the people I love I wish I could just fall asleep and make this go away. I see how it hurts them and I don’t mean to test my limits. I just feel so lost and alone. Slowly being swallowed by this empty hole in me.
I can’t wait to change jobs and get this year over with. 2015 started out so great. I got engaged and pregnant. Two things I have wanted my whole life. I turned 30 and went through radiation the same day. I’m still getting married but I’m not having a baby. I may not have any babies and that is a whole other kettle of fish and insecurity.
I need some good things to happen I my life. I feel selfish wishing for that but I feel I deserve it. 66ndaua until my cruise. Been looking at honeymoons and getting pumped about that. I know I’ll get better. I just don’t know how long it will take. And that scares me.